“Mummy, It’s Too Loud”

08/07/15

From a young age, J has often complained about certain noises. For as long as I can remember I’ve had to be careful about hand driers in public toilets – even someone else using them can send him screaming off into a corner holding his ears and it can take him some time to calm down again afterwards. He went through a phase of hating the hairdryer and the hoover at home – now he will tolerate the hoover as long as he has warning of me preparing to use it, and on the understanding I don’t use it in the same room he’s in; with the hairdryer he is now happy to let me use it on him, but again it’s only on his terms – if he wants me to use it to dry his hair, and we have to count “1,2,3” before I switch it on and if at any point during the process he asks me to turn it off I have to do so quickly, or else he’ll freak out.

Other triggers I’ve found is the noise of a busy main road – the cars etc rushing back and forth is OK for a while, but quickly overwhelms him if it’s constant; the noise of helicopters is fascinating for him for a short time, but again it will quickly get too much. Sometimes, crowds of people is too much for him to cope with – other times, he’ll happily deal with it. I’ve found a lot of it depends on how tired he is, how much he’s already dealt with over the day, and also what his focus is – when we’re in McDonalds for instance he’ll deal with the noise of people talking, the beeping of the tils and the cooking equipment, the noise of the speakers for the drive-thru and the music playing, because he is focused intently on his Happy Meal, his toy, and his balloon – but if I take him into a ‘normal’ restaurant with no distraction, for instance when we’re seated and waiting for our meal to arrive, or in that aching long gap between main course and dessert, then the noises of his surroundings become too much and he’ll hide under the table covering his ears, or his go-to option tends to be to run, and try to escape the situation.

Sometimes, I find it’s not worth getting him worked up and upset and I will avoid the situation to avoid him having a rough time. Other times, it’s an important situation, such as a birthday meal or other special event, and we’ll go and deal with it but it takes careful planning – I’m never without some Lego to keep him amused, or a book we can read together, even a small packet of crayons or pencils and a colouring book to pass the time. When sitting somewhere I’ll try to sit us in a corner if its possible, and let him sit with his back to the wall and in the corner seat – not only does this seem to help make him feel more comfortable, but it slows down his progress if he does default to the ‘run’ setting, which can buy me valuable seconds to get up and catch up with him myself if necessary.

One thing I wasn’t aware of was how common this hyper sensitivity is amongst people on the autistic spectrum. I found this article enlightening and realised that once again J aligns with ‘typical’ characteristics of ASD.

A few weeks ago, Grandad P asked J if he would like to attend Duxford air show with him, and Daddy P. Initially J wasn’t too keen on the idea – it’s a totally new concept to him, he’s never been to an air show before as I was aware that the huge crowd and loud noises would be overwhelming to him – but he’s almost five now, and Daddy P went to air shows a lot with his dad as a child, as I did with my grandad, and it’s something we both associate with happy childhood memories, something I don’t want to deny J of. So we spoke about it some more, Grandad P showed J some models of aircraft that will be at the show and explained a bit more about it, and J liked the sound of it so by the end of the afternoon he was excited at the prospect of a day out with daddy and grandad.

My concern remained the large crowd and the noise. After all, if it was billed as a fun day out the last thing I wanted was J to become overwhelmed and either have a meltdown about it or run off, both of which would be bound to put a dampener on the day. I spoke with Daddy P about the idea of some ear defenders, and he agreed that sounded like a very good plan.

I ordered these from E Bay, and they arrived within a few days of placing the order. They’re a bright, funky colour, they’re sturdy and appear to be designed with comfort and practicality in mind. I was very pleased when they arrived.

So far J has only tried them on in the house, and he said they made everything sound funny – well I suppose they would, as they minimise sound so in an already quiet environment it must be a bit disorientating having sound minimised even more. I’ve explained to him though that he’ll take them with him when he goes to the air show, and if he feels that the noise is getting a bit much, and he’s getting a bit overwhelmed, he needs to tell daddy or grandad and they can help him put his ear defenders on to help him have a bit of peace and quiet without having to leave the situation completely, because I want him to see the aircraft in flight and enjoy the show, to not miss out on the point of the air show because of the noise that comes with it. The fact that the pilots will also be wearing ear defenders is something I’m hoping will encourage him to put them on, as it won’t seem out of place to be wearing them if he sees other people wearing them too.

The air show is this weekend, so I’ll let you know next week how he gets on!

Peace & Love

Mummy P

xxxx

“Days Like These”

23/06/15

Sometimes, we have periods of days at a time where J’s behaviour is fabulous. Not flawless, because what four year old child is, but days at a time when we don’t have meltdowns or tantrums, hitting or throwing things.

At other times, we struggle to get through a day without several instances of up / down behaviour. Days like these are exhausting. Days like these, when I’m pushed to my limits, I wonder how I can cope, I wonder what I’m doing wrong, I wonder why I’m such a rubbish mum that he acts this way. Days like these are, unfortunately, more often than not.

Today, we’d had a fabulous day. He was up this morning in a good mood, well rested and energised. He ate breakfast and got washed and dressed without me having to prompt him every two minutes to hurry up. We left the house on time and he walked nicely to school, holding my hand, chattering excitedly as four year olds do at 8.30am about who he was going to see, who he wanted to play with and talk to, and the things he wanted to do. At school, the door opened and he gave me a hug and a kiss and with a casual, “Bye mum, love you” over his shoulder he ran full pelt up the ramp and into school. The teacher who stands at the door looked over to me and gave me a big smile and two thumbs up. I smiled and gave her a thumbs up back. A successful morning.

At the end of school, the teaching assistant Miss Brown said to me that J had a good day. She said they’d spoken about the school trip tomorrow and he was excited about it – I had been dubious as he’d been rather apprehensive last week at the prospect of travelling out of school without me or Daddy P – but she said today they’d had a chat and she’d told him some of the things they’d be seeing and doing and he was looking forward to it. One of the children celebrates their birthday tomorrow, so their birthday lunch was today and each child in the class walked out with a cupcake. Miss Morris, the other teaching assistant, smiled at me and said it had been a good day today. J came out happily, clutching his cupcake, and took my hand to walk out of the school without any issue.

We walked part of the way home with his best friend, K, and her mum and baby sister. J and K were chatting and hugging the whole time, as they do, and when we got to the point where they head in the opposite direction to get to their house, K ran off from her mum because she wanted to come home with us. Instead of running off to join her, J stood next to me, holding my hand, and called her a silly head for running away from her mum, and told her she should come back and hold her mums hand, because we were on a main road and, as he pointed out, main roads are dangerous and she shouldn’t be running around like that next to one. When she ran back, her mum managed to get hold of her hand, and she and J hugged and kissed and said goodbye. Without any argument, J then turned and walked away from her, still holding my hand, and we walked home. A successful school pick up.

At home, he got changed and then we sat down to do his homework. He was a bit silly about it at times, and got a bit distracted, but I reminded him that it needed to be done before I’d let him watch any TV (the biggest threat there meaning he couldn’t watch his beloved DanTDM Minecraft videos on YouTube) It helped to focus him, and the homework was finished before the timer went off. He watched some YouTube videos while I cooked his dinner, and ate most of his dinner before the timer went off. A successful homework and dinner time.

Daddy P got home from work, and we watched TV together with J cuddled up on the sofa with me, and Daddy P and I ate dinner. Unfortunately it ended up that it was later than it should have been by the time J went upstairs with Daddy P and that’s where the issues started. To start off J didn’t want to get into his PJs – then he started being silly about brushing his teeth, and started arguing with Daddy P about it. It didn’t take long for this to escalate, as they (metaphorically) butted heads as only a parent and a child who share a similar personality will do. The job of brushing teeth before bed, which should in theory take only a couple of minutes, turned into a 20 minute mission with J becoming upset, frustrated, crying, shouting, kicking, hitting, calling Daddy P a meanie head and generally the both of them becoming wound up by what should have been a straightforward situation.

Once it was done, and J was back in his bedroom, the switch flicked again and J was calm, wanting cuddles, seeking my affection and wanting to snuggle down and have stories read to him, as if the screaming and shouting of the last 20 minutes hadn’t happened.

It was only a small hiccup in an otherwise fabulous day. For J, it was a tiny glitch and given that it wasn’t a huge meltdown and it only lasted 20 minutes, that was a very minor moment over the whole day. But it’s an example of how quickly his mood will swing.

It’s difficult, as his parent, not to continue feeling annoyed and disgruntled with him for the less desirable behaviour once the moment has passed and he is once again ‘up’ and behaving in a more desirable way. You have to literally take a moment to have a deep breath before you continue, because if you carry on feeling down after a glitch like that, you’ll very quickly push J back into another moment. The more moments he has over the day, the more tiring it is for you both, and the worse the day feels. If you can get over it as quickly as he does, and move onto the next moment of the day without carrying those feelings of annoyance over from one moment to the next, then you’re going to have a better day.

It’s difficult, because parents who don’t deal with this type of behaviour often (I’m sure) think I’m being soft on J, that I’m somehow not punishing him enough for the less desirable behaviour, that I’m forgiving and forgetting too easily – but he processes things and deals with things in a different way to the generally accepted way of processing and dealing, and I’ve found that for him, my way of dealing seems to work well (on the whole). I break each day down into small segments – as well as remembering that he processes differently, he is only four years old, he’s still learning and developing, and a day to him is a long period of time, so it’s important, I think, not to carry on about something that happened in the morning well into the evening – it’s lost relevance by then. By breaking the day down into smaller segments, it makes it easier for him to process and it makes it easier for him to understand consequences of his actions. There’s no point telling him off in the evening for something he did in the morning. At the end of each day, we talk about the day in segments, and I award him stickers for each segment if he has behaved well for that particular segment. If not, no sticker, and then we count up how many stickers he has earned over the whole day, so then this allows him to see whether he has had a good day or a not so good day.

I’m learning more and more each day from him on what works better, how he works, what works for us as a team as we try to understand one another, what’s expected, what’s accepted, and we both make mistakes on a daily basis. The most important thing to me, is that no matter what, J knows I’m on his side; I’m trying my best, and I know he is, too. This journey we’re on has only just begun, and it’s exhausting and overwhelming and daunting, but we’ll make it together, because after all, he’s my boy, I’m his mum, and that love gives me the strength to fight these battles with him, to stand up straight and look to the future and not to be scared of it, but to want to educate myself, and others, and to find out all I can to help me better understand how I can support him.

It does make me angry and frustrated when people stare because he’s stimming, or behaving in a way they don’t understand because he’s feeling overwhelmed in a situation, but it doesn’t help to try and deal with them at the same time, so I tend to block out everyone else and deal with J as if we’re the only two people there. Quite often when I’m doing that, other people try and talk to me, try to help, try to make suggestions, and I find it easier to ignore them, which I’m sure they think is me being rude, and in a way it is, but my point is that I need to deal with him and the issues that he is having at that time – He is my priority, and with someone else trying to interfere with that it is not helping the situation.  If they stick around for long enough after the incident for me to speak with them, I’ll try to explain, but more often than not people tend to either leave you to it or when you try and explain they think you’re making excuses for what is a badly behaved child. I’ve overheard people say that I just need to tell him no, that I need to be more strict with him, that I need to give him a smack, and trust me when I say there have been times when I’ve wondered the same myself – but I’m not soft on him, he has rules and limitations and I don’t let him run riot, so even though I have these moments of doubt I can say confidently that this isn’t the reason for his less desirable behaviour. As for giving him a smack – well no, I don’t believe that solves anything. I have slapped his hands for things like reaching toward the fire or going to poke the dog, but I’m not the sort of person who believes that smacking a child to discipline them works, on the whole. I prefer to teach by example, rather than using fear of physical injury.

We’re no closer to any kind of diagnosis, which is frustrating, because I’m still waiting for an appointment for his assessment with the CDC. Having said that, I appreciate we are already at this point in the process, as I know of other people whose children are older than J who are still waiting for their GP to provide a referral, or for their child’s school to recognise an issue and start the ball in motion. I’m relieved that J’s school picked up on it quickly, and early on, and have taken it seriously, and I’m grateful to the SENCO at his school who has been by my side from early on supporting me and guiding me to get to the bottom of it all.

We’re just taking each day as it comes – as exhausting and exhilarating as it is – but by doing that we’re getting through each week, each month – and each year. He’ll be five in a little over two months time, yet it seems like just yesterday he was born. While some days feel endless, and I’m exhausted and don’t think I can do it all again tomorrow, we’re getting there together and at the end of each day, no matter what it’s been like, when he hugs me tightly and tells me he loves me, I know absolutely that every single moment is worthwhile.

Peace & Love,

Mummy P

x x x x x

October Half-Term Holiday

In an effort to keep J entertained this half-term (and therefore make half-term less stressful for all involved) I decided the best option was to keep him busy, so I decided we'd go to my parents. It also works out better for me, as it means I have someone there to look after J while I’m getting on with work – at home alone with him on half term while I’m trying to work is next to impossible as he is interrupting me every five minutes and it makes everything take ages longer than it should to get done.

He broke up from school on the Wednesday, and while he was at school I packed our things and got the car ready for a long journey. After collecting him from school, he got changed and we got in the car. Having done the trip many times before, I prepare thoroughly – he had a small lunch bag containing various Tupperware boxes with nibbles for the journey and two bottles of drink (I also take an empty bottle with me in case of emergencies!) He had his backpack containing his (fully charged) Leappad, a notebook and pencil case, a couple of toy cars and some Lego pieces. I picked up a very handy car organiser in Aldi a couple of weeks ago for £5 and in this I put other small bits and pieces which would help keep him entertained. For me, up front in the drivers seat for 113 miles, I had a thermos travel mug of coffee and a bottle of strawberry water along with a packet of sugar free mints. We got in the car and set off for the journey.

J is very good at car journeys – he always has been, right from when he was tiny. His first ever car journey was home from the hospital like most babies – it takes about 40 mins and he slept the whole way in his CabrioFix carseat. We travel this particular journey a few times a year, normally just J and I, and we stay with my parents for a few nights and visit family and friends we don’t often get to see.

The Queen Elizabeth II bridge - Image by www.mrsmithworldphotography.com

Our journey is by default 2 hours door to door, however there is normally some kind of hold up on the way making it longer. On the way there we encountered a silly man who failed to realise the person in front had braked by the toll booths at the Dartford crossing on the M25. Police were on scene but the two damaged vehicles, plus police cars, made a bottle neck style squeeze right before the toll booths to get off the Queen Elizabeth bridge which delayed us by about 40 minutes. J was brilliant the whole time, chattering away to his invisible friends (there are many – it varies who he has with him, but at that point it was constantly Emmett and Lucy from The Lego Movie) He was building with his Lego and pretending they were helping him, I had Radio 1 on the car radio and it was all very civilised and relaxed despite the hold ups. We arrived at mums later than planned, but it wasn’t a big deal and we ate dinner as soon as we arrived then J went to bed.

Our first full day there was Thursday, and I had to work – Once mum had been to the dentists and come home again, I disappeared upstairs to work in the loft room (my old bedroom – it’s always very surreal sitting there working) Mum kept J entertained and they had a great time. The following day I came downstairs for lunch and J played up as soon as I appeared – once I went back upstairs again he was fine. It’s weird how he gets like that when there’s more than one person about.

On Saturday we piled into the car with my dad, and we drove another few miles to visit my brother, his wife and their daughter. J is obsessed with his cousin R – he loves visiting them all, and when we’re there he wants to cuddle and kiss her all the time. The trouble is, R is not a particularly tactile little lady – yet – she’s only six months old and she’s unsure of us because she doesn’t see us very often, so she tends to be worried about J’s constant affection and seeking the reassurance of her mum and dad. Since J does get himself so over excited about visiting them he does tend to go off on the deep end a bit – he starts running around, getting louder and louder, and sillier and sillier. After some work checks I suggested we all went for a walk, so we got R in the pushchair and went out. J held onto the pushchair nicely and we went to see the planes nearby, but on the way home he started getting silly and didn’t want to hold hands to walk nicely. His Uncle J and myself ended up grabbing a hand each and almost dragging him along as he screamed about wanting to hold the pushchair again – we explained if he wanted to, he’d have to walk holding hands til we caught up with his Auntie E and the pushchair, but he continued screaming and struggling the whole way. By this point my dad was beginning to understand the difficulties I have with J as he’d never really witnessed much before and it’s difficult to explain to people in a way that they realise when you say you can’t do something it isn’t for lack of trying. J held onto the pushchair and walked nicely again. Then, for reasons best known to himself, he let go, and he raced off down the road.

The road is very quiet, but it’s a turning off a busy, fast road and while the chances of him coming to any harm in their road are remote, if he’d got as far as the main road and tripped over into it or raced out to cross it in his silly mood, it could have been disastrous. Fortunately my brother can shift when he puts his mind to it and he stopped J getting any further, then held his hand back to their house. Once there, J and I went into the back garden so he could carry on running around without causing damage to their home – for a while we had a great time.

One thing about J is that even if he’s boiling hot and red faced with sweat pouring off him, he won’t think to take his sweater off or pause for a drink and catch his breath, he’ll keep going. So as he started getting hotter and sweatier, Auntie E asked him to stop and take his sweater off and have a drink. He wanted to have a drink first, and went indoors for it. He then came to the backdoor with a mouthful of squash and spat it out onto the patio.

I was so upset. We’d had a big chat just a couple of days before travelling to mums house about him spitting. It certainly isn’t a habit he’s picked up from myself or Daddy P – I think it’s absolutely disgusting and I’ve been known to tell off friends of mine for doing it! There’s no reason for spitting and yet J for some reason has always gone through phases of doing it. (Last time was when he was about 3 and he would hang over the edge of the sofa in the front room and spit onto the floor, saying he couldn’t swallow the spit in his mouth because swallowing meant going uphill due to the position he was in) My brother told him off for spitting and asked him why he’d done it. At this point, J had a meltdown.

Whether it was because it was so unexpected having my brother tell him off, whether it was because he realised that Uncle J is a force to be reckoned with (he’s a mild mannered, laid back character, but he is a stubborn and strong willed man too) whether it was because he realised as soon as he’d done it what a big mistake it was and felt silly, I don’t know, but J literally went off on one. There were tears, screams, he was struggling to get away from Uncle J’s grip, kicking out at him, yelling, he was asking me to help him because he didn’t want Uncle J to have him, all sorts. Uncle J was calm and firm, kept repeating himself to J “Why did you spit? Tell me why and I’ll let you go” for ages all J kept doing was screaming no and mummy help and it took a long time to realise that wasn’t getting him anywhere so he eventually gave Uncle J a reason – that he’d taken too big a mouthful of squash. They had a chat about taking smaller sips of squash and not spitting.

The meltdown was a fairly impressive one, considering he’s never done it in front of J and E / at their house before. Usually his really spectacular behaviour is reserved for myself and Daddy P, sometimes in front of my parents and rarely in front of Grandma and Grandad P. I was really impressed with the way my brother reacted – he kept calm, he got down on the same level as J, he spoke calmly and firmly and repeated himself and provided reasoning and everything that you’re meant to do but which sometimes, when it’s the fifth or sixth time that day and I didn’t sleep too well the night before, the things I find so difficult to do. My dad started to get really concerned with the degree of meltdown after the calm-down time and the conversation, and then without warning J suddenly revved up again and was yelling and screaming. My brother wanted to explain to him why we didn’t spit (us civilised, well mannered human beings in developed countries) and J was done listening. This meltdown I was the one trying to hold onto him as he went beserk. He landed several punches, kicked me in the stomach (I was sat on the floor trying to wrap my arms and legs around him to stop him running off or hurting himself and he managed to get me several times and with a lot of force) He started pulling my hair to get me closer to him and smack me round the face or headbutt me. He grabbed my jumper and pulled at it to expose the skin on my neck and shoulder and then grabbed it with his hand and dug in his nails. At one point I tried to wrap my arm around him and control him and he grabbed two fingers of my right hand and bent them in opposite directions as he squealed in my ear. His transformation from Jekyll into Hyde was complete, and all in front of his Uncle J, who continued dealing remarkably well, but who was obviously surprised by this behaviour.

In total, not including the five minute breather after the incident and before part 2 of the meltdown, J was screaming / yelling for two hours. It started around three, just as his cousin R went up for her nap – it didn’t finish until twenty past five, when I said to him he’d wasted our time there and it was time to pack up and go. He was upset and started getting worked up about that – I told him if he hadn’t wasted all our time being silly and having a tantrum he could have done much more playing with Lego with Uncle J, more reading 10 Little Fishes with Auntie E, more watching In The Night Garden with cousin R. I eventually had to carry him, still screaming and yelling and kicking and hitting at me, to the car and put him into the carseat then wrestle the seatbelt around him. He continued for a short time but soon realised he was getting no further reaction from me or my dad, and he calmed down. Back at their house, he kicked up a fuss about dinner and refused to eat, so he ended up going to bed with hardly any dinner but he was so exhausted by that point after such a stressful day that he fell asleep exhausted relatively early. My dad couldn't believe it – he was in total shock about the behaviour. (More about that in a later post) I may have gone to the supermarket once he was asleep (with mum and dad at home with him, obvs) and got a bottle of vodka and I may have got a little drunk that night. It wasn’t a successful day – and more than a little challenging.

Sunday I woke feeling apprehensive. After the meltdown of the previous afternoon I wasn't sure how J was going to behave and I wasn't sure if he would still be in the frame of mind where he wanted to go home. I needn't have worried – he’d slept well and woken up in a good mood and gone downstairs with my mum. He didn't mention coming home again, and we had a lovely day. On Monday I worked in the loft room again – mum’s sister, my Aunt M, came round and spent the morning with mum and J. Once again at lunchtime I went downstairs and J immediately started acting up – Aunt M had to leave, J continued to tantrum throughout lunch so eventually mum left me with J. One thing we've found when J starts acting up is that it’s made worse by having more than one person there. If you’re left with him to get on, chances are he’ll come down and it’ll be fine pretty soon. Sure enough it worked and soon we swapped, so I could go back upstairs and carry on working and mum spent the afternoon with J.

On Tuesday I was off work but mum and dad both went to work. J and I had a lovely morning – we did some crafting (we made a book!) and we watched some Thomas and some Scooby Do. At lunchtime we were treated to a visit from an old friend of mine. A is not a parent, but she adores Star Wars and Lego and her and J are good friends. We spent a wonderful afternoon with her and then J had an early bath and was ready for bed by the time my mum got home from work – I headed out for the evening, leaving mum to babysit. Mum reported that he was absolutely fine and went to bed with no arguments *relief*

We made our return journey on Wednesday. Again I loaded the car carefully to make sure J was well entertained for the duration. Once more the Dartford crossing was stuffed and added almost an extra hour to our drive time but we made it and got home by mid afternoon. It had been a tiring but on the whole a lovely time with my parents. I’m sure they needed a rest from us as much as we needed to get back to our own home by the end of it!

Love,

Mummy P

xxx

A Challenging Week

It’s been a difficult week this week. As well as still feeling poorly, and the anniversary of nan’s death, we’ve had a few incidents with J which have left me feeling like quite a failure as a mother.

At long last however, following J having a meltdown at school resulting in him physically attacking me in front of staff and other students, his teacher took me to see the SENS lady at the school. After a long conversation with her, I felt much better and slightly less of a failure.

It’s difficult to explain to someone the change that sometimes comes over J. When he’s good, he’s very, very good, when he’s bad he is awful. He gets an ‘angry face’ on with gritted teeth and he’ll lash out. At school on Thursday morning it was about taking off his coat. I tried to help – he said he didn’t need help so I stopped trying to help – he flopped to the floor, getting under foot of other parents and kids in the cloakroom, and started rolling about. I got him to his feet, said to him he couldn’t be rolling round on the floor like that because he’d get hurt, and tried again to help him take off his coat. He kicked at me – he punched me – he grabbed a handful of my hair and yanked it one way while kicking me again. He’s only four, and he’s a slight build, but when the rage takes over and he starts lashing out it really is painful. And I don’t think people can appreciate how bad it gets until they’ve seen it – on Thursday it was the first time that the teachers saw him get physical with me.

The SENS lady was very understanding and very helpful and we established that J seems to have some issues surrounding certain things. She is writing a recommendation for our GP that J is assessed to see whether he needs any additional support – whether he is on the autistic spectrum at all or whether it is a case of him needing to be taught additional tools to help him learn to control his behaviour. His love of routine, order, lining things up, the way he will hold a conversation with an adult without an issue but has difficulty relating to kids his own age, all seem to point toward him being on the autistic spectrum somewhere, but at this point we need the assessment to see.

If he is, it’s not like it will make a difference to me – he’s just J as far as I’m concerned, and despite as upset as he makes me at times I do love the bones of him and would do anything to support him. I want the assessment to see if there is any additional help he can get. I don’t want him labelled as a troublemaker, or that kid who hits, or for him to be one of those children who gets to secondary school and ends up in the lower sets because he can’t concentrate properly so he ends up getting left behind with a bunch of kids who’re in the lower sets because they don’t want to apply themselves properly. (I know – I was one of the kids who ended up in the lower set for maths at school despite desperately wanting to do better I just can’t get my head around mathematics and so I ended up in a classroom of kids who only wanted to muck about and not actually learn)

It was a big relief for me to hear someone say that I was doing the best I could in difficult circumstances because for a long time I’ve felt like I’m failing him in some core way by not being able to deal with him properly 100% of the time. I’m fed up of feeling like a bad parent because he runs off and refuses to come back to me; or when he starts kicking off and getting physical with me. Early this week another child from his class was removed from the school to attend a specialist school due to his difficulties and the fact that the school J is at cannot provide the support this other kid needed. When speaking to the SENS lady about this she did say that J’s behaviour was noticeably worse when the other child was around because he would copy the bad behaviour. Now the other child has gone they hope that will help to calm J down considerably but she and his teachers agree there may be an underlying reason for his behaviour difficulties.

I refuse to call days “good” or “bad” any more. We would have far too many bad days and I feel that’s like telling J he is doing something “wrong”. I prefer to say he has had a difficult day, or a challenging day, and when he gets upset and starts lashing out rather than tell him that is wrong I’m explaining why he shouldn’t do it, that it makes the other person feel sad and hurt, and we’ve had a few less difficult times this week. I don’t know if that’s a result of the other kid leaving school, or because I’m going at it from a different direction or a combination, or maybe it’s just because he’s getting over his cold so he is sleeping better. His behaviour is always worse when he’s ill, because he doesn’t sleep well. He was always such a good sleeper as a baby but after he got to 2.5yrs that went out the window – he’ll be in our bed four nights out of seven at least by six o’clock in the morning.

Today he is being very attention seeking. Since waking me up at 8am by screaming and smacking me because Daddy P had gone to work without saying goodbye to him (we were both still asleep) he has been constantly demanding. I’ve had two days off work sick this week so I’m desperately trying to catch up, as well as do the housework that hasn’t been done all week because I’ve been unwell (those damn housework fairies never did show up to lend a hand!) every time I try to do something he’s interrupting me – he wants a drink, he wants something to eat, he wants me to help him with part of his game, he wants me to watch him playing his game, he needs the loo, he wants to play with my phone, whatever. It means everything is taking twice as long as it should because I can’t just get on and do it. I eventually asked for some quiet time and during that quiet time he sat there getting closer and closer saying “mummy, mummy, mummy” constantly until I snapped. I got up and told him to leave me alone for a moment while I calmed down and went into the kitchen. He followed me “mummy, mummy, mummy” so I went upstairs for a while. I feel terrible when I do this but it’s either walk away or shout at him and I’m trying my hardest not to shout. It’s not his fault I feel so shit. It’s not his fault I can’t split myself in four pieces so one piece can do housework while the other plays with him while the other works and the other catches up on sleep. It’s just all been snowballing and getting so much to cope with that I don’t feel like I’m able to cope anymore. Not like this. Which is why I’m so relieved that the school have finally started taking me seriously and are helping. I’ve been asking them since he started Nursery for some assistance. A year and a bit later we’re finally getting there.

I know, if he is on the spectrum, a diagnosis is a long way off. I know, if he is on the spectrum, this is just a baby step into a very long journey but the way I’m looking at it is, at least we’ve taken that step.

Now, I’m going to have a coffee and spend some time playing with him.

Love,

Mummy P