J has been a massive fan of
YouTuber DanTDM for a long time. He got into watching the videos at first
because Dan did a lot of Minecraft based videos, and I was happy for him to
watch them as Dan keeps it ‘clean’ with his language and there are always
warnings ahead of the video playing if it’s going to be something which will be
inappropriate for younger viewers, such as ‘horror maps’ which I don’t let J
watch as he tends to have nightmares afterwards.
You may know that one of the characteristics
of Asperger Syndrome is ‘obsessive’ behaviour, which I think is a bit of a
negative way of saying it, I prefer to say J has ‘passions’ rather than ‘obsessions’.
When he is interested in something he likes to know everything to know about
it, he immerses himself in it and he absorbs a wealth of information on the
subject. DanTDM is one of his passions, I would go so far as saying that he is
a hero of J’s. Nine times out of ten if J is watching a YouTube video, it will
be a DanTDM video, and he refers to himself as “Team TDM” and his favourite
colour is diamond blue.
Some months ago, I saw DanTDM
post on his Facebook page about doing a tour of the UK with a specially written
show. I thought it would be a wonderful thing to take J along to, so I was
thrilled to discover that the show was coming to the Ipswich Regent theatre on
August 13th, exactly a week after J’s sixth birthday. What an ideal
birthday gift! To top it off, there would be a limited number of special “Diamond”
tickets available – you could upgrade your standard ticket to a VIP one, and
have the added experience of a meet & greet with DanTDM himself, a photo
taken with him, and a special goodie bag of ‘exclusive DanTDM goodies’. It was
expensive, but with the help of my parents and Daddy P’s parents we got
ourselves three tickets for the show, and upgraded J’s to a Diamond VIP ticket.
We decided not to tell J that we
were going to the show until his birthday. This was to prevent him becoming too
worked up about it by knowing about it too far in advance, so we kept it a
secret and after his party last Sunday once everyone else had left and it was
just our family left, I told J about his main present, explaining that it wasn’t
something we could wrap, so I’d made a poster to show him with the information
on it. He didn’t seem very excited at the time, but he didn’t really take in
what it meant at the time. Later that evening he asked me what a theatre show
was, so I explained we would go and see DanTDM on stage doing a performance –
he thought it would be like going to the cinema and watching a normal YouTube
video on a big screen, so the thought of seeing the actual DanTDM in real life
started getting J excited about the idea.
As the week progressed he was
asking us things about the show, details like what the performance would be
about (which we had to explain we didn’t know, as we hadn’t seen it and it was
being kept secret until you went to see the show) He refused to watch the
teaser trailer that DanTDM posted on his YouTube page as he said he didn’t want
to ruin the surprise. I tried to prepare him for it as best I could, explaining
it would be a long, busy day, that there would be lots of other boys and girls
there and it would be crowded, noisy, that it would be dark in the theatre with
bright lights on the stage that would probably flash around the crowd at times.
It’s difficult to prepare any child for a new experience like that, but even
more so when your child is on the autistic spectrum and is very sensitive to
noise and lights.
On Thursday evening, we told him
that we had upgraded his ticket to a Diamond VIP ticket, and explained what
that meant. As the reality dawned on him that he was actually going to get a
chance to MEET his hero, and have a photo taken with him, he became even more
excited.
On Saturday morning, due to the
VIP experience, we had to set out early to make it to Ipswich on time. J was up
at 7.30 and making a picture to give to DanTDM when he met him. It took a
little while of persuading him to get washed and dressed, because we kept
saying that the show wouldn’t wait and if we weren’t there on time for the meet
& greet he wouldn’t get the chance. We were ready and finally left at 9am.
We arrived at the car park next
to the Ipswich Regent theatre just before 10am, and from there we walked to the
Corn Exchange for the meet & greet. A long line of people was already
waiting outside, so we joined the line and waited. At this point we had our
first hiccup of the day, because waiting in a line is boring as we all know,
and J hadn’t brought his stress ball to concentrate his energy on when he
became restless, so he began getting quite upset and agitated. He didn’t want
to hold our hands, or stand with us, he kept dancing about and getting quite
stressed. Other people in the queue started staring, and while I am now beyond
the point of caring about this, J is now at an age where is very aware of how
others are reacting to him, so once he noticed the staring he became more
upset. In the end Daddy P took him off for a walk while I waited in line, to
calm him down. Once the line started moving again as people started being let
in, Daddy P and J returned to me and we played “I Spy” as we shuffled towards
the door.
We only upgraded J’s ticket to
the Diamond VIP version, and as a child under 14 he had to have one adult with
him, so at the door Daddy P had to say goodbye to us and just J and I made our
way into the Corn Exchange.
It was well organised at this
point. Our tickets were checked at the door, then we gave our names to a lady
with a clipboard who checked us off and we got a raffle ticket, the number of
which was our turn to go and have the meet & greet with DanTDM and have the
photo taken. After this we went up the stairs to the merchandise table, and J
chose a lanyard with the TDMTour image on one side, and a space for Dan to
autograph on the other side. We went into the hall, and J chose seats to one
side of the hall, where he could clearly see the big screen TV that was set up
showing DanTDM YouTube videos.
There was a bit of a wait while
everyone else came into the hall, and once everyone was in and seated they
greeted us all and explained what was going to happen. Then DanTDM himself came
out onto stage with his familiar “Hi, everyone” shout, which is how he starts
all his YouTube videos, and the crowd went wild. J was sitting next to me in
stunned silence, his eyes huge, and glued onto the figure on the stage. I must
admit it was surreal even to me that this familiar person, whose voice I hear
daily, was suddenly standing in the same room, so goodness knows how crazy that
must have seemed to J.
Then Dan took his seat on the
stage, within the prop used for the photos, and one of the staff announced that
everyone with a raffle ticket number between 1 and 20 was to go and line up
beside the stage. Our ticket number was 72 so I knew we would have a wait
before it was our turn, so I concentrated on trying to ensure that J didn’t get
bored while we waited. We went to the loo (I know that seems a bit weird, but I
needed it by that point and it meant we spent about five minutes walking around
getting to the loo, doing what we needed, and walking back from the loo again)
By the time we were back in the hall, numbers 1-20 were about halfway through,
so then we sat looking around the hall and I was pointing out some of the
features like the circle seats at the back, the old light fittings in the big
dome on the ceiling, we looked at the other people there and we admired various
different DanTDM / Minecraft / various gaming t shirts, and hoodies, we spotted
all the people with blue hair, those who had modelled their entire look from
hairstyle to skinny jeans on DanTDM, we spotted people carrying pug soft toys (Dan’s
favourite dogs), those with the official tour baseball caps on sale, those with
lanyards the same as J’s, and J of course watched the video screen.
Numbers 21-40 went up to wait in
line and J asked again what number we were, so then we worked out how long we
had before it would be our turn to go and line up. At this point he started
getting a bit anxious because where we were sitting was right by where the line
was for going onto the stage, and with the full 20 people in the line, plus
their parents, for their photos, they ended up blocking the view from our seats
to the TV screen, so J didn’t have that to concentrate on, and he started
noticing how many people there were around him, how noisy it was in the hall,
and after rooting through my handbag for something to distract him the only
thing I could find was a tin of mints, so he had a mint and then decided he
wanted to lie on the floor under the chairs to feel safe.
To give them their credit, I didn’t
notice anyone in the hall bat an eyelid about this behaviour. If they did, they
were discreet about it. While it is totally normal for me to see him doing
things like this, and I could understand why he would find the cool, smooth
wooden floor calming, in situations like that you normally find at least one
person who gives him a funny look or stares at us like they can’t believe I am
allowing him to do whatever it is he is doing, but this group of people didn’t
make a fuss at all. Even the usher from the theatre who was in charge of the
line of people waiting for their photo to be taken just glanced over at him and
smiled at me.
By the time our group was called,
J was more than ready for things to happen. If we’d not been in that group I don’t
know how I’d have kept him entertained any longer. I may have messaged Daddy P
and asked him to get us some lunch and meet him at the door to collect it, but
as it was we just about managed to last and when numbers 61-80 were called J
shot out from under the row of seats and galloped to the lady checking the
numbered tickets and into the queue. We were behind another young lad and his
mum who had a picture for Dan, and in front of them was a lad with his mum who
had a knitted DanTDM toy that his grandma had made the night before, which
impressed J no end as Grandma P does a lot of knitting so he had the idea of
asking her to make him a DanTDM next time he sees her. They were both very nice
and we chatted while we waited, and behind us was another family with two boys,
plus mum and dad, and one of the boys was antsy about queuing as well so his
mum took him to sit in front of the TV screen beside the queue, and J ended up
sitting on the floor with them while I stood in line til it was almost our
turn. The guy at the bottom of the stage steps was lovely and chatted to J and
myself while we waited, and then when we were called up the stairs to stand at
the side of the stage ready to go and have J’s photo taken he was vibrating
with excitement and the guy realised that and was talking to him as well.
At last, it was J’s turn. He
skipped across the stage to Dan full of confidence, and when Dan said hello he
was laughing and said hello, and the pair of them sat and had a chat – J told
Dan all about the picture he’d drawn so they had a chat about that and Dan
complimented him on what a good picture it was, and thanked him for making the
effort, then he signed the lanyard, and they had their photo taken and finally
J got a high five from Dan and we left the stage. The whole thing had taken
only a couple of minutes but J was so excited and so happy. Immediately after
we got off the stage, we went to the lady in charge of the printer, and J’s
photo rolled out of the printer as we stood there and was put in a special
DanTDM Tour card. We went to the table where the goodie bags were set up and J
gave his name, received his goodie bag and then it was time for us to head back
outside and meet up with Daddy P.
One very happy little boy finally meeting his idol! |
To be honest, I had hoped for the
price we paid, the goodie bags would contain more goodies. Inside was a special
edition DanTDM Tour t shirt (we’d emailed weeks in advance for what size would
be required), a small packet of jelly beans and a bag of flavoured popcorn. The
bag itself is a sport-bag style with the DanTDM logo on it so that can be used
again, but after all the hype about the “special goodies” and the promise of “a
limited edition t shirt and much more included” I had been hoping for a bit
more. Luckily J wasn’t disappointed and was still skipping about because he’d
actually met and spoken with DanTDM.
We were out of the Corn Exchange
around midday, which meant we had an hour and a half until the show started
down the road at the Regent Theatre. We walked back to the car and popped into
McDonalds on the way to pick up some lunch, which we took back to the car to
eat – though disappointingly J’s Happy Meal was missing the drink and the sauce
which caused a bit of a hiccup as he started getting really upset about it
until Daddy P shared his milkshake. We chose to eat in the car as McDonalds
itself was so packed and noisy that even the brief time we were in there was an
issue for J – he was spinning, trying to run away to find somewhere to hide,
wanting to lie on the floor (not practical in a crowded McDonalds!) and was
generally becoming quite a handful, so we took our food and went to sit in the
car where it was familiar, and peaceful.
After eating lunch we headed to
the theatre, and to be honest this is the bit of the day that was the most
stressful. Although everything else up to that point had been busy and noisy,
it had at least been well organised and because we had been told what was
happening we could guide J and as long as he knows what is going on and what is
happening next he copes well even in new situations. This wasn’t well organised
and we didn’t know what was happening.
There was a massive line from the
doors of the theatre down the road. So naturally we joined the end of it,
thinking this is the line to get in. Ten minutes later, a guy selling
programmes for the show came down the line and announced, “This is the line for
the merchandise, so if you don’t want merchandise and just want to go straight
in, you don’t need to be lined up here”. Well thanks for that, man selling
programmes, but why wasn’t that clearly marked by some rope and a sign of some
sort? So half of us who’d been patiently standing in the wrong queue then went
around the line and through the doors into the foyer of the theatre.
In the foyer it was packed. There
were people everywhere, it was noisy, it was confusing, and it was hot. We had
tickets for Circle seats, and the doorway to a staircase marked “Circle” had a
line coming out of it that went back out of the theatre doors, that seemed to
include people waiting at the bar to buy drinks. We really didn’t know where we
were meant to be going or who to queue up behind, so we kind of stood in
amongst this mass of people to wait. Again, no guidance what was going on, who
was waiting for what, a lady did come and ask us all whether we had Circle
seats as she didn’t want Stall seat people waiting in the wrong place, but
everyone did (apart from those who were queuing for the bar) but other than
that it was very disorganised. J became agitated, we were in a massive crowd of
noisy people and it was hot and sweaty, and he wanted to find somewhere quiet
to relax but we had nowhere to go, it seemed ridiculous that they were letting
people into the foyer and not letting us into the theatre itself because we
just ended up getting more and more packed in and getting hotter and hotter, it
was getting noisier and noisier … The inevitable happened, J started spinning
and covered his ears and started walking backwards, which meant he was bumping
into people, he didn’t want to hold hands with me or Daddy P and instead wanted
to run around Daddy P in circles which was impractical because of how crowded
it was, but the more we tried to explain the more distressed he became. Daddy P
gave him the DanTDM Tour programme to look through to distract him, but he
wanted to lie on the floor of the foyer to read it, which was impractical due
to the crowd of people walking about.
I was on the verge of marching
over to the bar and demanding that they let us into a quiet room for J to calm
down as I could see he was teetering on the edge of having a meltdown due to
this huge sensory overload, but fortunately at that point they started letting
people into the theatre, and the line started shuffling up the stairs. J was
still not calm and it was difficult getting him to walk slowly behind the group
of people in the queue ahead of us, but we managed well until we got to the bottom
of the stairs, when a couple came down the stairs against the rest of the crowd
of people. Of course everyone else shuffled to the side to get out of their way
but J had his hands over his ears and was staring at his feet so he didn’t
realise the woman was coming straight toward him, and when I tried to tap his
shoulder to get his attention to get him to move he freaked and stepped
sideways, even more in the path of this woman – so she barged past him, a six
year old kid with his hands over his ears looking at his feet in amongst this
noisy, hot crowd of people, and she just marched by knocking him sideways into
me as she did so. Of course Mama Bear raised her head and I growled at this
woman about knocking my child out of the way and she could have said excuse me
and how rude of her to be so obnoxious to such a small child, but of course she
ignored me and instead her husband looked suitably ashamed as he scuttled along
behind her.
Fortunately the line was moving
quite rapidly by that point, so we continued to go upstairs and as we got
closer to the door into the theatre J began to visibly relax. As soon as we
were in and found our seats he was staring at the stage excitedly and bouncing
in his chair, completely at ease again. It was darker than it had been in the
foyer though the lights hadn’t gone down yet for the performance, it was noisy
with the chatter of the audience filing in, but it was cool and now we were in
the theatre and he could see the stage, J focused on that to help keep him
calm.
Once again, the familiar “Hi,
everyone!” rang out over the speakers as Dan came on stage and the whole place
erupted – but instead of being bothered by the noise, this time J was well and
truly part of it and he screamed, clapped, stamped his feet, cheered and booed
his way through the show, completely immersed in it all. He was completely and
utterly under the spell of DanTDM and all that was going on during the show,
and he loved every minute of it.
I took the opportunity during the
second half to pop out and visit the ladies room without the queue of hundreds,
and while I was out I stopped at the merchandise table, which was also free of
the crowd, and picked up a TeamTDM armband and an official TDMTour t shirt (J
had seen other kids wearing them and announced they were cool and he liked them
– since he hadn’t actually asked for anything from the merchandise stands and
had coped so admirably with everything that had been going on, I thought it
would be a nice additional treat to compliment the less than wonderful goodie
bag)
After the show, we exited the
theatre from the circle seats via a side door that lead us straight outside
rather than going through the foyer. We got back to the car and took a moment
to have a drink before we set off for home. J sat in the back talking about the
show until we started off for home – then he was very quiet. It’s normal for
him to chat constantly in the car, but if he’s particularly tired he will be
absolutely silent, and that was how he was yesterday on the way home (with the
exception of telling me as I did 60mph down the Bury Road from Ipswich that he
urgently needed a wee … thank goodness I am prepared for events like that, so
we pulled over and he used the Coke bottle from the boot!) After that he was
quiet again til we got home – he was his usual bouncy self at home, chatting
away and playing with a variety of toys for 30 seconds each before they were
abandoned in favour of something different – I did his dinner and Daddy P took
Baby A up to bed, then I took J up to bed at 8pm. I had been expecting him to
still be very hyped following the day, but instead he collapsed in bed without
argument and after I read him a couple of chapters of James and the Giant Peach
he wanted to listen to his BFG audio book until he fell asleep – which was only
a few minutes later.
As much as he enjoyed the experience
on the whole, I think if I were to take him to an event like that again I would
make sure we don’t leave the stress ball at home (I only had Chloe the cat in
my bag and he announced after trying to use her to calm down that she just didn’t
help) I would make sure that I had more to entertain him in the long queue, as
I was woefully unprepared for the amount of waiting that had to be done, though
it would have been hard to do much in the queue perhaps a pad of paper and a
pencil so he could do some drawings while we waited would have helped. Also I
would have taken his noise reducing headphones with us, except they have
mysteriously gone missing so I am going to need to invest in another pair since
they were so useful.
The confusion at the theatre I
hope they will consider looking into for future performances to prevent
children like J becoming overwhelmed, because he was so close to meltdown and
if he had gone into one at that point I would have had to take him to a quiet
room to calm down or else taken him out of the theatre and back to the car
which would have been next to impossible once he was in full blown meltdown. I
think it would have been better controlled with clearer signage outside for the
merchandise line; not allowing so many people into the foyer until they were at
the point of letting people into the theatre so it didn’t get so packed;
perhaps an idea could be for them to adopt a similar idea to Manchester
airport, which offers a ‘Blue Band’ option when you book your flights, which
alert staff to invisible issues such as autism and allows autistic customers
and their families to go through the airport without queuing and to be
provided with a quieter space for calming down when necessary (Personally
though I think most places like the theatre, all airports, train stations, bus
stations etc should adopt this idea as it’s not easy getting a child like J out
and about for events without meltdowns due to his sensory overload in those
situations).
Altogether it was a very
enjoyable day and I am very pleased we managed to get tickets and, more
importantly, that we were able to upgrade J’s ticket to a Diamond VIP one. It
really made the day extra special for him to meet his idol. It was an
exhausting day for us all, but it is one that we will all remember for a very
long time.